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Spotlight

A selection of stories from across the Federation

2024 trends
Story

What does the year 2024 hold for us?

As the new year begins, we take a look at the trends and challenges ahead for sexual and reproductive health and rights.

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Albertina Machaieie, Amodefa, Mozambique
story

| 06 December 2017

“I like helping people, that’s why I do this job”

Albertina Machaieie has been working with HIV patients for Amodefa for 38 years and is their longest serving nurse. “I’m going to work forever,” she says. “I like helping people, that’s why I do this job.” Albertina heads up Amodefa’s home care programme which provides medical, nutritional and emotional support to HIV positive patients living in the poorest suburbs of Maputo, the capital of Mozambique. She has seen a dramatic change in attitudes to HIV in the 19 years she has been running the service. In the past she had to hide her car and would visit her patients anonymously. “People feared HIV so they feared me coming to them,” she says.Now people welcome her into the community as a friend and will direct new patients to her. “They call us ‘Muhanyisse’”, which means saviour in the local language Shangaan, she says. Albertina and another nurse work with a large team of volunteers, or ‘activistas’, most of whom are also HIV positive. As well as delivering medication and food to patients and performing health examinations, an important part of Amodefa’s work is continuing to change attitudes towards HIV. “The homecare project encompasses everything,” she says. “It’s not just treatment for illness, we also work with the mind – people need to change their mindset.” She and the activistas give lectures in the community to raise awareness of HIV, and also offer counselling to patients, many of whom find it difficult to accept their HIV positive status. “Husbands and wives stop understanding each other when one is living in denial of HIV,” says Albertina. “They blame the illness on witchcraft.” In other cases, those carrying the virus are scared to tell their families for fear of being rejected. “There are many stories of family members, particularly of wives, who have found they are HIV positive and partners have threatened to leave,” she says. “But when Amodefa has stepped in and advocated, the husband has stayed.” This holistic approach to its homecare has been so effective that medical and psychology students have come from Brazil, the US and Mexico to Mozambique to study the programme and to learn from Albertina’s experience. “I am the library for Amodefa,” she jokes. Over the course of her career Albertina has worked with many challenging cases – particularly men. “Women are more open to treatment because they want to get better so they can care for their children,” she says, “but men often won’t seek help until their health has severely deteriorated.” She recalls one case where a woman tested positive for HIV while she was pregnant. She told her husband to get tested but he refused, and he also prevented his wife from taking any treatment. As a result her baby was born HIV positive - as were her second and third born. “With her last child she started taking the treatment without her husband’s knowledge and the baby was born without HIV,” says Albertina. “This man now says, ‘People, you need to be open – I have three positive children and it is my fault because I would not accept the truth.’” “Children who are HIV positive and don’t know often abandon their medication because they are tired of taking the drugs,” says Albertina. “Ntyiso teaches the importance of taking the medicine. When they are aware of their status, they start taking the medicine normally.” Albertina worked with ten families during the pilot phase of the programme. “Already I have seen great changes in the children, it shows why this project of revelation is so important.” The Ntiyso is a pilot project implemented in Maputo City and it has its focus on disclosure of the HIV + status to adolescents. It targets mothers, parents and caregivers of adolescents. The main activities are: Education and training of Mothers, Parents and caregivers of adolescents to reveal HIV+ status to their adolescents. Due to the Global Gag Rule this project lost its funding and was forced to close.

Albertina Machaieie, Amodefa, Mozambique
story

| 28 March 2024

“I like helping people, that’s why I do this job”

Albertina Machaieie has been working with HIV patients for Amodefa for 38 years and is their longest serving nurse. “I’m going to work forever,” she says. “I like helping people, that’s why I do this job.” Albertina heads up Amodefa’s home care programme which provides medical, nutritional and emotional support to HIV positive patients living in the poorest suburbs of Maputo, the capital of Mozambique. She has seen a dramatic change in attitudes to HIV in the 19 years she has been running the service. In the past she had to hide her car and would visit her patients anonymously. “People feared HIV so they feared me coming to them,” she says.Now people welcome her into the community as a friend and will direct new patients to her. “They call us ‘Muhanyisse’”, which means saviour in the local language Shangaan, she says. Albertina and another nurse work with a large team of volunteers, or ‘activistas’, most of whom are also HIV positive. As well as delivering medication and food to patients and performing health examinations, an important part of Amodefa’s work is continuing to change attitudes towards HIV. “The homecare project encompasses everything,” she says. “It’s not just treatment for illness, we also work with the mind – people need to change their mindset.” She and the activistas give lectures in the community to raise awareness of HIV, and also offer counselling to patients, many of whom find it difficult to accept their HIV positive status. “Husbands and wives stop understanding each other when one is living in denial of HIV,” says Albertina. “They blame the illness on witchcraft.” In other cases, those carrying the virus are scared to tell their families for fear of being rejected. “There are many stories of family members, particularly of wives, who have found they are HIV positive and partners have threatened to leave,” she says. “But when Amodefa has stepped in and advocated, the husband has stayed.” This holistic approach to its homecare has been so effective that medical and psychology students have come from Brazil, the US and Mexico to Mozambique to study the programme and to learn from Albertina’s experience. “I am the library for Amodefa,” she jokes. Over the course of her career Albertina has worked with many challenging cases – particularly men. “Women are more open to treatment because they want to get better so they can care for their children,” she says, “but men often won’t seek help until their health has severely deteriorated.” She recalls one case where a woman tested positive for HIV while she was pregnant. She told her husband to get tested but he refused, and he also prevented his wife from taking any treatment. As a result her baby was born HIV positive - as were her second and third born. “With her last child she started taking the treatment without her husband’s knowledge and the baby was born without HIV,” says Albertina. “This man now says, ‘People, you need to be open – I have three positive children and it is my fault because I would not accept the truth.’” “Children who are HIV positive and don’t know often abandon their medication because they are tired of taking the drugs,” says Albertina. “Ntyiso teaches the importance of taking the medicine. When they are aware of their status, they start taking the medicine normally.” Albertina worked with ten families during the pilot phase of the programme. “Already I have seen great changes in the children, it shows why this project of revelation is so important.” The Ntiyso is a pilot project implemented in Maputo City and it has its focus on disclosure of the HIV + status to adolescents. It targets mothers, parents and caregivers of adolescents. The main activities are: Education and training of Mothers, Parents and caregivers of adolescents to reveal HIV+ status to their adolescents. Due to the Global Gag Rule this project lost its funding and was forced to close.

Palmira Enoque Tembe, Mozambique,
story

| 01 December 2017

“I’m fine and I am making plans for the future. I know now to get ill is not to die”

Palmira Enoque Tembe, 54, is HIV positive She lives with two sons, who are also HIV positive, and four grandchildren in a small house in Bairro Feiroviaro on the outskirts of Maputo. Three times a week she is visited by Amodefa volunteers and once a week by a nurse who provide medication, food and therapy to the family. “Amodefa counsels me through the difficulties in life,” Palmira says. Palmira found out she had HIV when her youngest child was nine months old. He was diagnosed as HIV positive. Palmira asked her husband to get tested too,“He refused” says Palmira. “He said I was possessed by evil spirits and was trying to kill him and my son". Her husband abandoned the family and Palmira was left to battle the illness and raise the children on her own. “I was terrified. I lost hope. I didn’t want to do anything, just sit in my room and cry,” she says. Now, however, the nutritious food, medication and regular medical check-ups she receives as part of the homecare programme have given her a new lease on life. “I’m fine and I am making plans for the future. I know now to get ill is not to die,” says Palmira, who has started to subsistence farm again. At first she was wary of the service. “It seemed like an advertisement for having HIV and I didn’t want my neighbours to isolate me,” she says. “But now I depend on it.” It was through Amodefa’s new pilot counselling project, ‘Ntyiso’ - which translates as ‘The Truth’ in the local language, Shangaan - Palmira was finally able to open up to her son that he had HIV too. While he had always suspected he was carrying the virus, he needed to hear it from his mother for it to become real.“It has changed by life,” she says. “It has improved our relationship because I no longer feel ashamed.” The Ntiyso is a pilot project implemented in Maputo City and it has its focus on disclosure of the HIV + status to adolescents. It targets mothers, parents and caregivers of adolescents. The main activities are: Education and training of Mothers, Parents and caregivers of adolescents to reveal HIV+ status to their adolescents. Due to the Global Gag Rule this project lost its funding and was forced to close. Read more about AMODEFA's tireless work in Mozambique

Palmira Enoque Tembe, Mozambique,
story

| 28 March 2024

“I’m fine and I am making plans for the future. I know now to get ill is not to die”

Palmira Enoque Tembe, 54, is HIV positive She lives with two sons, who are also HIV positive, and four grandchildren in a small house in Bairro Feiroviaro on the outskirts of Maputo. Three times a week she is visited by Amodefa volunteers and once a week by a nurse who provide medication, food and therapy to the family. “Amodefa counsels me through the difficulties in life,” Palmira says. Palmira found out she had HIV when her youngest child was nine months old. He was diagnosed as HIV positive. Palmira asked her husband to get tested too,“He refused” says Palmira. “He said I was possessed by evil spirits and was trying to kill him and my son". Her husband abandoned the family and Palmira was left to battle the illness and raise the children on her own. “I was terrified. I lost hope. I didn’t want to do anything, just sit in my room and cry,” she says. Now, however, the nutritious food, medication and regular medical check-ups she receives as part of the homecare programme have given her a new lease on life. “I’m fine and I am making plans for the future. I know now to get ill is not to die,” says Palmira, who has started to subsistence farm again. At first she was wary of the service. “It seemed like an advertisement for having HIV and I didn’t want my neighbours to isolate me,” she says. “But now I depend on it.” It was through Amodefa’s new pilot counselling project, ‘Ntyiso’ - which translates as ‘The Truth’ in the local language, Shangaan - Palmira was finally able to open up to her son that he had HIV too. While he had always suspected he was carrying the virus, he needed to hear it from his mother for it to become real.“It has changed by life,” she says. “It has improved our relationship because I no longer feel ashamed.” The Ntiyso is a pilot project implemented in Maputo City and it has its focus on disclosure of the HIV + status to adolescents. It targets mothers, parents and caregivers of adolescents. The main activities are: Education and training of Mothers, Parents and caregivers of adolescents to reveal HIV+ status to their adolescents. Due to the Global Gag Rule this project lost its funding and was forced to close. Read more about AMODEFA's tireless work in Mozambique

ミラン・カダカさん
story

| 29 November 2017

Meet the college student who uses his music to battle the stigma surrounding HIV

Milan Khadka was just ten years old when he lost both his parents to HIV. “When I lost my parents, I used to feel so alone, like I didn’t have anyone in the world,” he says. “Whenever I saw other children getting love from others, I used to feel that I also might get that kind of love if I hadn’t lost my parents.” Like thousands of Nepali children, Milan’s parents left Nepal for India in search of work. Milan grew up in India until he was ten, when his mother died of AIDS-related causes. The family then returned to Nepal, but just eight months later, his father also died, and Milan was left in the care of his grandmother. “After I lost my parents, I went for VCT [voluntary counselling and testing] to check if I had HIV in my body,” Milan says. “After I was diagnosed as HIV positive, slowly all the people in the area found out about my status and there was so much discrimination. My friends at school didn’t want to sit with me and they humiliated and bullied me,” he says. “At home, I had a separate sleeping area and sleeping materials, separate dishes and a separate comb for my hair. I had to sleep alone.” Things began to improve for Milan when he met a local woman called Lakshmi Kunwar. After discovering she was HIV-positive, Lakshmi had dedicated her life to helping people living with HIV in Palpa, working as a community home-based care mobiliser for the Family Planning Association of Nepal (FPAN) and other organisations. Struck by the plight of this small, orphaned boy, Lakshmi spoke to Milan’s family and teachers, who in turn spoke to his school mates. “After she spoke to my teachers, they started to support me,” Milan says. “And after getting information about HIV, my school friends started to like me and share things with me. And they said: ‘Milan has no one in this world, so we are the ones who must be with him. Who knows that what happened to him might not happen to us?” Lakshmi mentored him through school and college, encouraging him in his schoolwork. “Lakshmi is more than my mother,” he says. “My mother only gave birth to me but Lakshmi has looked after me all this time. Even if my mother was alive today, she might not do all the things for me that Lakshmi has done.” Milan went on to become a grade A student, regularly coming top of his class and leaving school with flying colours. Today, twenty-one-year-old Milan lives a busy and fulfilling life, juggling his college studies, his work as a community home-based care (CHBC) mobiliser for FPAN and a burgeoning music career. When not studying for a Bachelor’s of education at university in Tansen, he works as a CHBC mobiliser for FPAN, visiting villages in the area to raise awareness about how to prevent and treat HIV, and to distribute contraception. He also offers support to children living with HIV, explaining to them how he lost his parents and faced discrimination but now leads a happy and successful life. “There are 40 children in this area living with HIV,” he says. “I talk to them, collect information from them and help them get the support they need. And I tell them: ‘If I had given up at that time, I would not be like this now. So you also shouldn’t give up, and you have to live your life.” Watch Milan's story below:      

ミラン・カダカさん
story

| 28 March 2024

Meet the college student who uses his music to battle the stigma surrounding HIV

Milan Khadka was just ten years old when he lost both his parents to HIV. “When I lost my parents, I used to feel so alone, like I didn’t have anyone in the world,” he says. “Whenever I saw other children getting love from others, I used to feel that I also might get that kind of love if I hadn’t lost my parents.” Like thousands of Nepali children, Milan’s parents left Nepal for India in search of work. Milan grew up in India until he was ten, when his mother died of AIDS-related causes. The family then returned to Nepal, but just eight months later, his father also died, and Milan was left in the care of his grandmother. “After I lost my parents, I went for VCT [voluntary counselling and testing] to check if I had HIV in my body,” Milan says. “After I was diagnosed as HIV positive, slowly all the people in the area found out about my status and there was so much discrimination. My friends at school didn’t want to sit with me and they humiliated and bullied me,” he says. “At home, I had a separate sleeping area and sleeping materials, separate dishes and a separate comb for my hair. I had to sleep alone.” Things began to improve for Milan when he met a local woman called Lakshmi Kunwar. After discovering she was HIV-positive, Lakshmi had dedicated her life to helping people living with HIV in Palpa, working as a community home-based care mobiliser for the Family Planning Association of Nepal (FPAN) and other organisations. Struck by the plight of this small, orphaned boy, Lakshmi spoke to Milan’s family and teachers, who in turn spoke to his school mates. “After she spoke to my teachers, they started to support me,” Milan says. “And after getting information about HIV, my school friends started to like me and share things with me. And they said: ‘Milan has no one in this world, so we are the ones who must be with him. Who knows that what happened to him might not happen to us?” Lakshmi mentored him through school and college, encouraging him in his schoolwork. “Lakshmi is more than my mother,” he says. “My mother only gave birth to me but Lakshmi has looked after me all this time. Even if my mother was alive today, she might not do all the things for me that Lakshmi has done.” Milan went on to become a grade A student, regularly coming top of his class and leaving school with flying colours. Today, twenty-one-year-old Milan lives a busy and fulfilling life, juggling his college studies, his work as a community home-based care (CHBC) mobiliser for FPAN and a burgeoning music career. When not studying for a Bachelor’s of education at university in Tansen, he works as a CHBC mobiliser for FPAN, visiting villages in the area to raise awareness about how to prevent and treat HIV, and to distribute contraception. He also offers support to children living with HIV, explaining to them how he lost his parents and faced discrimination but now leads a happy and successful life. “There are 40 children in this area living with HIV,” he says. “I talk to them, collect information from them and help them get the support they need. And I tell them: ‘If I had given up at that time, I would not be like this now. So you also shouldn’t give up, and you have to live your life.” Watch Milan's story below:      

IPPFタイでボランティア活動をするジヘ・ホンさん
story

| 24 October 2017

"We visit them in their real lives, because they may not have time to go to clinics to check their status"

  Few people are at higher risk of HIV infection or STIs than sex workers. Although sex work is illegal in Thailand, like in so many countries many turn a blind eye. JiHye Hong is a volunteer with PPAT, the Planned Parenthood Association of Thailand, and she works with the HIV and STIs prevention team in and around Bangkok. One month into her volunteer project, she has already been out on 17 visits to women who work in high risk entertainment centres. “They can be a target group,” explains JiHye. “Some of them can’t speak Thai, and they don’t have Thai ID cards. They are young.” The HIV and STIs prevention team is part of PPAT’s Sexual and Reproductive Health department in Bangkok. It works with many partners in the city, including secondary schools and MSM (men who have sex with men) groups, as well as the owners of entertainment businesses. They go out to them on door-to-door visits. “We visit them in their real lives, because they may not have time to go to clinics to check their status,” says JiHye. “Usually we spend about an hour for educational sessions, and then we do activities together to check if they’ve understood. It’s the part we can all do together and enjoy.” The team JiHye works with takes a large picture book with them on their visits, one full of descriptions of symptoms and signs of STIs, including graphic images that show real cases of the results of HIV/AIDs and STIs. It’s a very clear way of make sure everyone understands the impact of STIs. Reaction to page titles and pictures which include “Syphilis” “Gonorrhoea” “Genital Herpes” and “Vaginal Candidiasis” are what you might expect. “They are often quite shocked, especially young people. They ask a lot of questions and share concerns,” says JiHye. The books and leaflets used by the PPAT team don’t just shock though. They also explain issues such as sexuality and sexual orientations too, to raise awareness and help those taking part in a session understand about diversity and equality. After the education sessions, tests are offered for HIV and/or Syphilis on the spot to anyone who wants one. For Thai nationals, up to two HIV tests a year are free, funded by the Thai Government. An HIV test after that is 140 Thai Baht or about four US Dollars. A test for Syphilis costs 50 Bhat. “An HIV rapid test takes less than 30 minutes to produce a result which is about 99% accurate,” says JiHye. The nurse will also take blood samples back to the lab for even more accurate testing, which takes two to three days.” At the same time, the groups are also given advice on how it use condoms correctly, with a model penis for demonstration, and small PPAT gift bags are handed out, containing condoms, a card with the phone numbers for PPATs clinics and a small carry case JiHye, who is from South Korea originally, is a graduate in public health at Tulane University, New Orleans. That inspired her to volunteer for work with PPAT. “I’ve really learned that people around the world are the same and equal, and a right to access to health services should be universal for all, regardless of ages, gender, sexual orientations, nationality, religions, and jobs.”

IPPFタイでボランティア活動をするジヘ・ホンさん
story

| 28 March 2024

"We visit them in their real lives, because they may not have time to go to clinics to check their status"

  Few people are at higher risk of HIV infection or STIs than sex workers. Although sex work is illegal in Thailand, like in so many countries many turn a blind eye. JiHye Hong is a volunteer with PPAT, the Planned Parenthood Association of Thailand, and she works with the HIV and STIs prevention team in and around Bangkok. One month into her volunteer project, she has already been out on 17 visits to women who work in high risk entertainment centres. “They can be a target group,” explains JiHye. “Some of them can’t speak Thai, and they don’t have Thai ID cards. They are young.” The HIV and STIs prevention team is part of PPAT’s Sexual and Reproductive Health department in Bangkok. It works with many partners in the city, including secondary schools and MSM (men who have sex with men) groups, as well as the owners of entertainment businesses. They go out to them on door-to-door visits. “We visit them in their real lives, because they may not have time to go to clinics to check their status,” says JiHye. “Usually we spend about an hour for educational sessions, and then we do activities together to check if they’ve understood. It’s the part we can all do together and enjoy.” The team JiHye works with takes a large picture book with them on their visits, one full of descriptions of symptoms and signs of STIs, including graphic images that show real cases of the results of HIV/AIDs and STIs. It’s a very clear way of make sure everyone understands the impact of STIs. Reaction to page titles and pictures which include “Syphilis” “Gonorrhoea” “Genital Herpes” and “Vaginal Candidiasis” are what you might expect. “They are often quite shocked, especially young people. They ask a lot of questions and share concerns,” says JiHye. The books and leaflets used by the PPAT team don’t just shock though. They also explain issues such as sexuality and sexual orientations too, to raise awareness and help those taking part in a session understand about diversity and equality. After the education sessions, tests are offered for HIV and/or Syphilis on the spot to anyone who wants one. For Thai nationals, up to two HIV tests a year are free, funded by the Thai Government. An HIV test after that is 140 Thai Baht or about four US Dollars. A test for Syphilis costs 50 Bhat. “An HIV rapid test takes less than 30 minutes to produce a result which is about 99% accurate,” says JiHye. The nurse will also take blood samples back to the lab for even more accurate testing, which takes two to three days.” At the same time, the groups are also given advice on how it use condoms correctly, with a model penis for demonstration, and small PPAT gift bags are handed out, containing condoms, a card with the phone numbers for PPATs clinics and a small carry case JiHye, who is from South Korea originally, is a graduate in public health at Tulane University, New Orleans. That inspired her to volunteer for work with PPAT. “I’ve really learned that people around the world are the same and equal, and a right to access to health services should be universal for all, regardless of ages, gender, sexual orientations, nationality, religions, and jobs.”

Female staff smiling.
story

| 12 September 2017

There are around 40,000 sex workers in Nepal. Around 1,300 are living with HIV.

“Family Planning Association of Nepal is playing a crucial role in protecting the rights of female sex workers in the whole of Nepal” says Jamuna Sitvla, senior programme officer at Family Planning Association of Nepal (FPAN). There are around 40,000 sex workers in Nepal. Around 1,300 are infected with HIV. FPAN is working to increase awareness among sex workers to practice safe sex and to use condoms to protect from HIV. "One challenge is that when female sex workers carry condoms, if the police find the condoms, they criminalise the women. Some of the sex workers have been organised via different organisations in order to protect their rights. Now the Supreme Court has given an a ruling that policemen have to ensure the sexual rights of female sex workers have to be addressed. This decision includes that women can carry condoms: that is their right. The second decision is that sex workers have the right to organise. Some sex workers are afraid of asking heir clients to wear condoms and this increases their risk of contracting HIV but the more confident sex workers are ensuring that their clients wear condoms". "In 2017 there was a huge conference held at FPAN, with sex workers invited as panelists. People had the opportunity to understand the problems they were facing. One of FPAN’s great successes was to invite the criminal department of police, policy makers and sex workers to come under one roof. We gathered them in the FPAN venue and they made a commitment that from now on the female sex workers will be treated with respect, with dignity, will not be criminalised."   Stories Read more stories about our work with people living with HIV

Female staff smiling.
story

| 28 March 2024

There are around 40,000 sex workers in Nepal. Around 1,300 are living with HIV.

“Family Planning Association of Nepal is playing a crucial role in protecting the rights of female sex workers in the whole of Nepal” says Jamuna Sitvla, senior programme officer at Family Planning Association of Nepal (FPAN). There are around 40,000 sex workers in Nepal. Around 1,300 are infected with HIV. FPAN is working to increase awareness among sex workers to practice safe sex and to use condoms to protect from HIV. "One challenge is that when female sex workers carry condoms, if the police find the condoms, they criminalise the women. Some of the sex workers have been organised via different organisations in order to protect their rights. Now the Supreme Court has given an a ruling that policemen have to ensure the sexual rights of female sex workers have to be addressed. This decision includes that women can carry condoms: that is their right. The second decision is that sex workers have the right to organise. Some sex workers are afraid of asking heir clients to wear condoms and this increases their risk of contracting HIV but the more confident sex workers are ensuring that their clients wear condoms". "In 2017 there was a huge conference held at FPAN, with sex workers invited as panelists. People had the opportunity to understand the problems they were facing. One of FPAN’s great successes was to invite the criminal department of police, policy makers and sex workers to come under one roof. We gathered them in the FPAN venue and they made a commitment that from now on the female sex workers will be treated with respect, with dignity, will not be criminalised."   Stories Read more stories about our work with people living with HIV

Woman sat down
story

| 12 September 2017

"I said to myself: I will live and I will let others living with HIV live"

Lakshmi Kunwar married young, at the age of 17. Shortly afterwards, Lakshmi’s husband, who worked as a migrant labourer in India, was diagnosed with HIV and died. “At that time, I was completely unaware of HIV,” Lakshmi says. “My husband had information that if someone is diagnosed with HIV, they will die very soon. So after he was diagnosed, he didn’t eat anything and he became very ill and after six months he died. He gave up.” Lakshmi contracted HIV too, and the early years of living with it were arduous. “It was a huge burden,” she says. “I didn’t want to eat anything so I ate very little. My weight at the time was 44 kilograms. I had different infections in my skin and allergies in her body. It was really a difficult time for me. … I was just waiting for my death. I got support from my home and in-laws but my neighbours started to discriminate against me – like they said HIV may transfer via different insects and parasites like lice.” Dedicating her life to help others Lakshmi’s life began to improve when she came across an organisation in Palpa that offered support to people living with HIV (PLHIV). “They told me that there is medicine for PLHIV which will prolong our lives,” she explains. “They took me to Kathmandu, where I got training and information on HIV and I started taking ARVs [antiretroviral drugs].” In Kathmandu Lakshmi decided that she would dedicate the rest of her life to supporting people living with HIV. “I made a plan that I would come back home [to Palpa], disclose my status and then do social work with other people living with HIV, so that they too may have hope to live. I said to myself: I will live and I will let others living with HIV live”. Stories Read more stories about our work with people living with HIV

Woman sat down
story

| 28 March 2024

"I said to myself: I will live and I will let others living with HIV live"

Lakshmi Kunwar married young, at the age of 17. Shortly afterwards, Lakshmi’s husband, who worked as a migrant labourer in India, was diagnosed with HIV and died. “At that time, I was completely unaware of HIV,” Lakshmi says. “My husband had information that if someone is diagnosed with HIV, they will die very soon. So after he was diagnosed, he didn’t eat anything and he became very ill and after six months he died. He gave up.” Lakshmi contracted HIV too, and the early years of living with it were arduous. “It was a huge burden,” she says. “I didn’t want to eat anything so I ate very little. My weight at the time was 44 kilograms. I had different infections in my skin and allergies in her body. It was really a difficult time for me. … I was just waiting for my death. I got support from my home and in-laws but my neighbours started to discriminate against me – like they said HIV may transfer via different insects and parasites like lice.” Dedicating her life to help others Lakshmi’s life began to improve when she came across an organisation in Palpa that offered support to people living with HIV (PLHIV). “They told me that there is medicine for PLHIV which will prolong our lives,” she explains. “They took me to Kathmandu, where I got training and information on HIV and I started taking ARVs [antiretroviral drugs].” In Kathmandu Lakshmi decided that she would dedicate the rest of her life to supporting people living with HIV. “I made a plan that I would come back home [to Palpa], disclose my status and then do social work with other people living with HIV, so that they too may have hope to live. I said to myself: I will live and I will let others living with HIV live”. Stories Read more stories about our work with people living with HIV

Albertina Machaieie, Amodefa, Mozambique
story

| 06 December 2017

“I like helping people, that’s why I do this job”

Albertina Machaieie has been working with HIV patients for Amodefa for 38 years and is their longest serving nurse. “I’m going to work forever,” she says. “I like helping people, that’s why I do this job.” Albertina heads up Amodefa’s home care programme which provides medical, nutritional and emotional support to HIV positive patients living in the poorest suburbs of Maputo, the capital of Mozambique. She has seen a dramatic change in attitudes to HIV in the 19 years she has been running the service. In the past she had to hide her car and would visit her patients anonymously. “People feared HIV so they feared me coming to them,” she says.Now people welcome her into the community as a friend and will direct new patients to her. “They call us ‘Muhanyisse’”, which means saviour in the local language Shangaan, she says. Albertina and another nurse work with a large team of volunteers, or ‘activistas’, most of whom are also HIV positive. As well as delivering medication and food to patients and performing health examinations, an important part of Amodefa’s work is continuing to change attitudes towards HIV. “The homecare project encompasses everything,” she says. “It’s not just treatment for illness, we also work with the mind – people need to change their mindset.” She and the activistas give lectures in the community to raise awareness of HIV, and also offer counselling to patients, many of whom find it difficult to accept their HIV positive status. “Husbands and wives stop understanding each other when one is living in denial of HIV,” says Albertina. “They blame the illness on witchcraft.” In other cases, those carrying the virus are scared to tell their families for fear of being rejected. “There are many stories of family members, particularly of wives, who have found they are HIV positive and partners have threatened to leave,” she says. “But when Amodefa has stepped in and advocated, the husband has stayed.” This holistic approach to its homecare has been so effective that medical and psychology students have come from Brazil, the US and Mexico to Mozambique to study the programme and to learn from Albertina’s experience. “I am the library for Amodefa,” she jokes. Over the course of her career Albertina has worked with many challenging cases – particularly men. “Women are more open to treatment because they want to get better so they can care for their children,” she says, “but men often won’t seek help until their health has severely deteriorated.” She recalls one case where a woman tested positive for HIV while she was pregnant. She told her husband to get tested but he refused, and he also prevented his wife from taking any treatment. As a result her baby was born HIV positive - as were her second and third born. “With her last child she started taking the treatment without her husband’s knowledge and the baby was born without HIV,” says Albertina. “This man now says, ‘People, you need to be open – I have three positive children and it is my fault because I would not accept the truth.’” “Children who are HIV positive and don’t know often abandon their medication because they are tired of taking the drugs,” says Albertina. “Ntyiso teaches the importance of taking the medicine. When they are aware of their status, they start taking the medicine normally.” Albertina worked with ten families during the pilot phase of the programme. “Already I have seen great changes in the children, it shows why this project of revelation is so important.” The Ntiyso is a pilot project implemented in Maputo City and it has its focus on disclosure of the HIV + status to adolescents. It targets mothers, parents and caregivers of adolescents. The main activities are: Education and training of Mothers, Parents and caregivers of adolescents to reveal HIV+ status to their adolescents. Due to the Global Gag Rule this project lost its funding and was forced to close.

Albertina Machaieie, Amodefa, Mozambique
story

| 28 March 2024

“I like helping people, that’s why I do this job”

Albertina Machaieie has been working with HIV patients for Amodefa for 38 years and is their longest serving nurse. “I’m going to work forever,” she says. “I like helping people, that’s why I do this job.” Albertina heads up Amodefa’s home care programme which provides medical, nutritional and emotional support to HIV positive patients living in the poorest suburbs of Maputo, the capital of Mozambique. She has seen a dramatic change in attitudes to HIV in the 19 years she has been running the service. In the past she had to hide her car and would visit her patients anonymously. “People feared HIV so they feared me coming to them,” she says.Now people welcome her into the community as a friend and will direct new patients to her. “They call us ‘Muhanyisse’”, which means saviour in the local language Shangaan, she says. Albertina and another nurse work with a large team of volunteers, or ‘activistas’, most of whom are also HIV positive. As well as delivering medication and food to patients and performing health examinations, an important part of Amodefa’s work is continuing to change attitudes towards HIV. “The homecare project encompasses everything,” she says. “It’s not just treatment for illness, we also work with the mind – people need to change their mindset.” She and the activistas give lectures in the community to raise awareness of HIV, and also offer counselling to patients, many of whom find it difficult to accept their HIV positive status. “Husbands and wives stop understanding each other when one is living in denial of HIV,” says Albertina. “They blame the illness on witchcraft.” In other cases, those carrying the virus are scared to tell their families for fear of being rejected. “There are many stories of family members, particularly of wives, who have found they are HIV positive and partners have threatened to leave,” she says. “But when Amodefa has stepped in and advocated, the husband has stayed.” This holistic approach to its homecare has been so effective that medical and psychology students have come from Brazil, the US and Mexico to Mozambique to study the programme and to learn from Albertina’s experience. “I am the library for Amodefa,” she jokes. Over the course of her career Albertina has worked with many challenging cases – particularly men. “Women are more open to treatment because they want to get better so they can care for their children,” she says, “but men often won’t seek help until their health has severely deteriorated.” She recalls one case where a woman tested positive for HIV while she was pregnant. She told her husband to get tested but he refused, and he also prevented his wife from taking any treatment. As a result her baby was born HIV positive - as were her second and third born. “With her last child she started taking the treatment without her husband’s knowledge and the baby was born without HIV,” says Albertina. “This man now says, ‘People, you need to be open – I have three positive children and it is my fault because I would not accept the truth.’” “Children who are HIV positive and don’t know often abandon their medication because they are tired of taking the drugs,” says Albertina. “Ntyiso teaches the importance of taking the medicine. When they are aware of their status, they start taking the medicine normally.” Albertina worked with ten families during the pilot phase of the programme. “Already I have seen great changes in the children, it shows why this project of revelation is so important.” The Ntiyso is a pilot project implemented in Maputo City and it has its focus on disclosure of the HIV + status to adolescents. It targets mothers, parents and caregivers of adolescents. The main activities are: Education and training of Mothers, Parents and caregivers of adolescents to reveal HIV+ status to their adolescents. Due to the Global Gag Rule this project lost its funding and was forced to close.

Palmira Enoque Tembe, Mozambique,
story

| 01 December 2017

“I’m fine and I am making plans for the future. I know now to get ill is not to die”

Palmira Enoque Tembe, 54, is HIV positive She lives with two sons, who are also HIV positive, and four grandchildren in a small house in Bairro Feiroviaro on the outskirts of Maputo. Three times a week she is visited by Amodefa volunteers and once a week by a nurse who provide medication, food and therapy to the family. “Amodefa counsels me through the difficulties in life,” Palmira says. Palmira found out she had HIV when her youngest child was nine months old. He was diagnosed as HIV positive. Palmira asked her husband to get tested too,“He refused” says Palmira. “He said I was possessed by evil spirits and was trying to kill him and my son". Her husband abandoned the family and Palmira was left to battle the illness and raise the children on her own. “I was terrified. I lost hope. I didn’t want to do anything, just sit in my room and cry,” she says. Now, however, the nutritious food, medication and regular medical check-ups she receives as part of the homecare programme have given her a new lease on life. “I’m fine and I am making plans for the future. I know now to get ill is not to die,” says Palmira, who has started to subsistence farm again. At first she was wary of the service. “It seemed like an advertisement for having HIV and I didn’t want my neighbours to isolate me,” she says. “But now I depend on it.” It was through Amodefa’s new pilot counselling project, ‘Ntyiso’ - which translates as ‘The Truth’ in the local language, Shangaan - Palmira was finally able to open up to her son that he had HIV too. While he had always suspected he was carrying the virus, he needed to hear it from his mother for it to become real.“It has changed by life,” she says. “It has improved our relationship because I no longer feel ashamed.” The Ntiyso is a pilot project implemented in Maputo City and it has its focus on disclosure of the HIV + status to adolescents. It targets mothers, parents and caregivers of adolescents. The main activities are: Education and training of Mothers, Parents and caregivers of adolescents to reveal HIV+ status to their adolescents. Due to the Global Gag Rule this project lost its funding and was forced to close. Read more about AMODEFA's tireless work in Mozambique

Palmira Enoque Tembe, Mozambique,
story

| 28 March 2024

“I’m fine and I am making plans for the future. I know now to get ill is not to die”

Palmira Enoque Tembe, 54, is HIV positive She lives with two sons, who are also HIV positive, and four grandchildren in a small house in Bairro Feiroviaro on the outskirts of Maputo. Three times a week she is visited by Amodefa volunteers and once a week by a nurse who provide medication, food and therapy to the family. “Amodefa counsels me through the difficulties in life,” Palmira says. Palmira found out she had HIV when her youngest child was nine months old. He was diagnosed as HIV positive. Palmira asked her husband to get tested too,“He refused” says Palmira. “He said I was possessed by evil spirits and was trying to kill him and my son". Her husband abandoned the family and Palmira was left to battle the illness and raise the children on her own. “I was terrified. I lost hope. I didn’t want to do anything, just sit in my room and cry,” she says. Now, however, the nutritious food, medication and regular medical check-ups she receives as part of the homecare programme have given her a new lease on life. “I’m fine and I am making plans for the future. I know now to get ill is not to die,” says Palmira, who has started to subsistence farm again. At first she was wary of the service. “It seemed like an advertisement for having HIV and I didn’t want my neighbours to isolate me,” she says. “But now I depend on it.” It was through Amodefa’s new pilot counselling project, ‘Ntyiso’ - which translates as ‘The Truth’ in the local language, Shangaan - Palmira was finally able to open up to her son that he had HIV too. While he had always suspected he was carrying the virus, he needed to hear it from his mother for it to become real.“It has changed by life,” she says. “It has improved our relationship because I no longer feel ashamed.” The Ntiyso is a pilot project implemented in Maputo City and it has its focus on disclosure of the HIV + status to adolescents. It targets mothers, parents and caregivers of adolescents. The main activities are: Education and training of Mothers, Parents and caregivers of adolescents to reveal HIV+ status to their adolescents. Due to the Global Gag Rule this project lost its funding and was forced to close. Read more about AMODEFA's tireless work in Mozambique

ミラン・カダカさん
story

| 29 November 2017

Meet the college student who uses his music to battle the stigma surrounding HIV

Milan Khadka was just ten years old when he lost both his parents to HIV. “When I lost my parents, I used to feel so alone, like I didn’t have anyone in the world,” he says. “Whenever I saw other children getting love from others, I used to feel that I also might get that kind of love if I hadn’t lost my parents.” Like thousands of Nepali children, Milan’s parents left Nepal for India in search of work. Milan grew up in India until he was ten, when his mother died of AIDS-related causes. The family then returned to Nepal, but just eight months later, his father also died, and Milan was left in the care of his grandmother. “After I lost my parents, I went for VCT [voluntary counselling and testing] to check if I had HIV in my body,” Milan says. “After I was diagnosed as HIV positive, slowly all the people in the area found out about my status and there was so much discrimination. My friends at school didn’t want to sit with me and they humiliated and bullied me,” he says. “At home, I had a separate sleeping area and sleeping materials, separate dishes and a separate comb for my hair. I had to sleep alone.” Things began to improve for Milan when he met a local woman called Lakshmi Kunwar. After discovering she was HIV-positive, Lakshmi had dedicated her life to helping people living with HIV in Palpa, working as a community home-based care mobiliser for the Family Planning Association of Nepal (FPAN) and other organisations. Struck by the plight of this small, orphaned boy, Lakshmi spoke to Milan’s family and teachers, who in turn spoke to his school mates. “After she spoke to my teachers, they started to support me,” Milan says. “And after getting information about HIV, my school friends started to like me and share things with me. And they said: ‘Milan has no one in this world, so we are the ones who must be with him. Who knows that what happened to him might not happen to us?” Lakshmi mentored him through school and college, encouraging him in his schoolwork. “Lakshmi is more than my mother,” he says. “My mother only gave birth to me but Lakshmi has looked after me all this time. Even if my mother was alive today, she might not do all the things for me that Lakshmi has done.” Milan went on to become a grade A student, regularly coming top of his class and leaving school with flying colours. Today, twenty-one-year-old Milan lives a busy and fulfilling life, juggling his college studies, his work as a community home-based care (CHBC) mobiliser for FPAN and a burgeoning music career. When not studying for a Bachelor’s of education at university in Tansen, he works as a CHBC mobiliser for FPAN, visiting villages in the area to raise awareness about how to prevent and treat HIV, and to distribute contraception. He also offers support to children living with HIV, explaining to them how he lost his parents and faced discrimination but now leads a happy and successful life. “There are 40 children in this area living with HIV,” he says. “I talk to them, collect information from them and help them get the support they need. And I tell them: ‘If I had given up at that time, I would not be like this now. So you also shouldn’t give up, and you have to live your life.” Watch Milan's story below:      

ミラン・カダカさん
story

| 28 March 2024

Meet the college student who uses his music to battle the stigma surrounding HIV

Milan Khadka was just ten years old when he lost both his parents to HIV. “When I lost my parents, I used to feel so alone, like I didn’t have anyone in the world,” he says. “Whenever I saw other children getting love from others, I used to feel that I also might get that kind of love if I hadn’t lost my parents.” Like thousands of Nepali children, Milan’s parents left Nepal for India in search of work. Milan grew up in India until he was ten, when his mother died of AIDS-related causes. The family then returned to Nepal, but just eight months later, his father also died, and Milan was left in the care of his grandmother. “After I lost my parents, I went for VCT [voluntary counselling and testing] to check if I had HIV in my body,” Milan says. “After I was diagnosed as HIV positive, slowly all the people in the area found out about my status and there was so much discrimination. My friends at school didn’t want to sit with me and they humiliated and bullied me,” he says. “At home, I had a separate sleeping area and sleeping materials, separate dishes and a separate comb for my hair. I had to sleep alone.” Things began to improve for Milan when he met a local woman called Lakshmi Kunwar. After discovering she was HIV-positive, Lakshmi had dedicated her life to helping people living with HIV in Palpa, working as a community home-based care mobiliser for the Family Planning Association of Nepal (FPAN) and other organisations. Struck by the plight of this small, orphaned boy, Lakshmi spoke to Milan’s family and teachers, who in turn spoke to his school mates. “After she spoke to my teachers, they started to support me,” Milan says. “And after getting information about HIV, my school friends started to like me and share things with me. And they said: ‘Milan has no one in this world, so we are the ones who must be with him. Who knows that what happened to him might not happen to us?” Lakshmi mentored him through school and college, encouraging him in his schoolwork. “Lakshmi is more than my mother,” he says. “My mother only gave birth to me but Lakshmi has looked after me all this time. Even if my mother was alive today, she might not do all the things for me that Lakshmi has done.” Milan went on to become a grade A student, regularly coming top of his class and leaving school with flying colours. Today, twenty-one-year-old Milan lives a busy and fulfilling life, juggling his college studies, his work as a community home-based care (CHBC) mobiliser for FPAN and a burgeoning music career. When not studying for a Bachelor’s of education at university in Tansen, he works as a CHBC mobiliser for FPAN, visiting villages in the area to raise awareness about how to prevent and treat HIV, and to distribute contraception. He also offers support to children living with HIV, explaining to them how he lost his parents and faced discrimination but now leads a happy and successful life. “There are 40 children in this area living with HIV,” he says. “I talk to them, collect information from them and help them get the support they need. And I tell them: ‘If I had given up at that time, I would not be like this now. So you also shouldn’t give up, and you have to live your life.” Watch Milan's story below:      

IPPFタイでボランティア活動をするジヘ・ホンさん
story

| 24 October 2017

"We visit them in their real lives, because they may not have time to go to clinics to check their status"

  Few people are at higher risk of HIV infection or STIs than sex workers. Although sex work is illegal in Thailand, like in so many countries many turn a blind eye. JiHye Hong is a volunteer with PPAT, the Planned Parenthood Association of Thailand, and she works with the HIV and STIs prevention team in and around Bangkok. One month into her volunteer project, she has already been out on 17 visits to women who work in high risk entertainment centres. “They can be a target group,” explains JiHye. “Some of them can’t speak Thai, and they don’t have Thai ID cards. They are young.” The HIV and STIs prevention team is part of PPAT’s Sexual and Reproductive Health department in Bangkok. It works with many partners in the city, including secondary schools and MSM (men who have sex with men) groups, as well as the owners of entertainment businesses. They go out to them on door-to-door visits. “We visit them in their real lives, because they may not have time to go to clinics to check their status,” says JiHye. “Usually we spend about an hour for educational sessions, and then we do activities together to check if they’ve understood. It’s the part we can all do together and enjoy.” The team JiHye works with takes a large picture book with them on their visits, one full of descriptions of symptoms and signs of STIs, including graphic images that show real cases of the results of HIV/AIDs and STIs. It’s a very clear way of make sure everyone understands the impact of STIs. Reaction to page titles and pictures which include “Syphilis” “Gonorrhoea” “Genital Herpes” and “Vaginal Candidiasis” are what you might expect. “They are often quite shocked, especially young people. They ask a lot of questions and share concerns,” says JiHye. The books and leaflets used by the PPAT team don’t just shock though. They also explain issues such as sexuality and sexual orientations too, to raise awareness and help those taking part in a session understand about diversity and equality. After the education sessions, tests are offered for HIV and/or Syphilis on the spot to anyone who wants one. For Thai nationals, up to two HIV tests a year are free, funded by the Thai Government. An HIV test after that is 140 Thai Baht or about four US Dollars. A test for Syphilis costs 50 Bhat. “An HIV rapid test takes less than 30 minutes to produce a result which is about 99% accurate,” says JiHye. The nurse will also take blood samples back to the lab for even more accurate testing, which takes two to three days.” At the same time, the groups are also given advice on how it use condoms correctly, with a model penis for demonstration, and small PPAT gift bags are handed out, containing condoms, a card with the phone numbers for PPATs clinics and a small carry case JiHye, who is from South Korea originally, is a graduate in public health at Tulane University, New Orleans. That inspired her to volunteer for work with PPAT. “I’ve really learned that people around the world are the same and equal, and a right to access to health services should be universal for all, regardless of ages, gender, sexual orientations, nationality, religions, and jobs.”

IPPFタイでボランティア活動をするジヘ・ホンさん
story

| 28 March 2024

"We visit them in their real lives, because they may not have time to go to clinics to check their status"

  Few people are at higher risk of HIV infection or STIs than sex workers. Although sex work is illegal in Thailand, like in so many countries many turn a blind eye. JiHye Hong is a volunteer with PPAT, the Planned Parenthood Association of Thailand, and she works with the HIV and STIs prevention team in and around Bangkok. One month into her volunteer project, she has already been out on 17 visits to women who work in high risk entertainment centres. “They can be a target group,” explains JiHye. “Some of them can’t speak Thai, and they don’t have Thai ID cards. They are young.” The HIV and STIs prevention team is part of PPAT’s Sexual and Reproductive Health department in Bangkok. It works with many partners in the city, including secondary schools and MSM (men who have sex with men) groups, as well as the owners of entertainment businesses. They go out to them on door-to-door visits. “We visit them in their real lives, because they may not have time to go to clinics to check their status,” says JiHye. “Usually we spend about an hour for educational sessions, and then we do activities together to check if they’ve understood. It’s the part we can all do together and enjoy.” The team JiHye works with takes a large picture book with them on their visits, one full of descriptions of symptoms and signs of STIs, including graphic images that show real cases of the results of HIV/AIDs and STIs. It’s a very clear way of make sure everyone understands the impact of STIs. Reaction to page titles and pictures which include “Syphilis” “Gonorrhoea” “Genital Herpes” and “Vaginal Candidiasis” are what you might expect. “They are often quite shocked, especially young people. They ask a lot of questions and share concerns,” says JiHye. The books and leaflets used by the PPAT team don’t just shock though. They also explain issues such as sexuality and sexual orientations too, to raise awareness and help those taking part in a session understand about diversity and equality. After the education sessions, tests are offered for HIV and/or Syphilis on the spot to anyone who wants one. For Thai nationals, up to two HIV tests a year are free, funded by the Thai Government. An HIV test after that is 140 Thai Baht or about four US Dollars. A test for Syphilis costs 50 Bhat. “An HIV rapid test takes less than 30 minutes to produce a result which is about 99% accurate,” says JiHye. The nurse will also take blood samples back to the lab for even more accurate testing, which takes two to three days.” At the same time, the groups are also given advice on how it use condoms correctly, with a model penis for demonstration, and small PPAT gift bags are handed out, containing condoms, a card with the phone numbers for PPATs clinics and a small carry case JiHye, who is from South Korea originally, is a graduate in public health at Tulane University, New Orleans. That inspired her to volunteer for work with PPAT. “I’ve really learned that people around the world are the same and equal, and a right to access to health services should be universal for all, regardless of ages, gender, sexual orientations, nationality, religions, and jobs.”

Female staff smiling.
story

| 12 September 2017

There are around 40,000 sex workers in Nepal. Around 1,300 are living with HIV.

“Family Planning Association of Nepal is playing a crucial role in protecting the rights of female sex workers in the whole of Nepal” says Jamuna Sitvla, senior programme officer at Family Planning Association of Nepal (FPAN). There are around 40,000 sex workers in Nepal. Around 1,300 are infected with HIV. FPAN is working to increase awareness among sex workers to practice safe sex and to use condoms to protect from HIV. "One challenge is that when female sex workers carry condoms, if the police find the condoms, they criminalise the women. Some of the sex workers have been organised via different organisations in order to protect their rights. Now the Supreme Court has given an a ruling that policemen have to ensure the sexual rights of female sex workers have to be addressed. This decision includes that women can carry condoms: that is their right. The second decision is that sex workers have the right to organise. Some sex workers are afraid of asking heir clients to wear condoms and this increases their risk of contracting HIV but the more confident sex workers are ensuring that their clients wear condoms". "In 2017 there was a huge conference held at FPAN, with sex workers invited as panelists. People had the opportunity to understand the problems they were facing. One of FPAN’s great successes was to invite the criminal department of police, policy makers and sex workers to come under one roof. We gathered them in the FPAN venue and they made a commitment that from now on the female sex workers will be treated with respect, with dignity, will not be criminalised."   Stories Read more stories about our work with people living with HIV

Female staff smiling.
story

| 28 March 2024

There are around 40,000 sex workers in Nepal. Around 1,300 are living with HIV.

“Family Planning Association of Nepal is playing a crucial role in protecting the rights of female sex workers in the whole of Nepal” says Jamuna Sitvla, senior programme officer at Family Planning Association of Nepal (FPAN). There are around 40,000 sex workers in Nepal. Around 1,300 are infected with HIV. FPAN is working to increase awareness among sex workers to practice safe sex and to use condoms to protect from HIV. "One challenge is that when female sex workers carry condoms, if the police find the condoms, they criminalise the women. Some of the sex workers have been organised via different organisations in order to protect their rights. Now the Supreme Court has given an a ruling that policemen have to ensure the sexual rights of female sex workers have to be addressed. This decision includes that women can carry condoms: that is their right. The second decision is that sex workers have the right to organise. Some sex workers are afraid of asking heir clients to wear condoms and this increases their risk of contracting HIV but the more confident sex workers are ensuring that their clients wear condoms". "In 2017 there was a huge conference held at FPAN, with sex workers invited as panelists. People had the opportunity to understand the problems they were facing. One of FPAN’s great successes was to invite the criminal department of police, policy makers and sex workers to come under one roof. We gathered them in the FPAN venue and they made a commitment that from now on the female sex workers will be treated with respect, with dignity, will not be criminalised."   Stories Read more stories about our work with people living with HIV

Woman sat down
story

| 12 September 2017

"I said to myself: I will live and I will let others living with HIV live"

Lakshmi Kunwar married young, at the age of 17. Shortly afterwards, Lakshmi’s husband, who worked as a migrant labourer in India, was diagnosed with HIV and died. “At that time, I was completely unaware of HIV,” Lakshmi says. “My husband had information that if someone is diagnosed with HIV, they will die very soon. So after he was diagnosed, he didn’t eat anything and he became very ill and after six months he died. He gave up.” Lakshmi contracted HIV too, and the early years of living with it were arduous. “It was a huge burden,” she says. “I didn’t want to eat anything so I ate very little. My weight at the time was 44 kilograms. I had different infections in my skin and allergies in her body. It was really a difficult time for me. … I was just waiting for my death. I got support from my home and in-laws but my neighbours started to discriminate against me – like they said HIV may transfer via different insects and parasites like lice.” Dedicating her life to help others Lakshmi’s life began to improve when she came across an organisation in Palpa that offered support to people living with HIV (PLHIV). “They told me that there is medicine for PLHIV which will prolong our lives,” she explains. “They took me to Kathmandu, where I got training and information on HIV and I started taking ARVs [antiretroviral drugs].” In Kathmandu Lakshmi decided that she would dedicate the rest of her life to supporting people living with HIV. “I made a plan that I would come back home [to Palpa], disclose my status and then do social work with other people living with HIV, so that they too may have hope to live. I said to myself: I will live and I will let others living with HIV live”. Stories Read more stories about our work with people living with HIV

Woman sat down
story

| 28 March 2024

"I said to myself: I will live and I will let others living with HIV live"

Lakshmi Kunwar married young, at the age of 17. Shortly afterwards, Lakshmi’s husband, who worked as a migrant labourer in India, was diagnosed with HIV and died. “At that time, I was completely unaware of HIV,” Lakshmi says. “My husband had information that if someone is diagnosed with HIV, they will die very soon. So after he was diagnosed, he didn’t eat anything and he became very ill and after six months he died. He gave up.” Lakshmi contracted HIV too, and the early years of living with it were arduous. “It was a huge burden,” she says. “I didn’t want to eat anything so I ate very little. My weight at the time was 44 kilograms. I had different infections in my skin and allergies in her body. It was really a difficult time for me. … I was just waiting for my death. I got support from my home and in-laws but my neighbours started to discriminate against me – like they said HIV may transfer via different insects and parasites like lice.” Dedicating her life to help others Lakshmi’s life began to improve when she came across an organisation in Palpa that offered support to people living with HIV (PLHIV). “They told me that there is medicine for PLHIV which will prolong our lives,” she explains. “They took me to Kathmandu, where I got training and information on HIV and I started taking ARVs [antiretroviral drugs].” In Kathmandu Lakshmi decided that she would dedicate the rest of her life to supporting people living with HIV. “I made a plan that I would come back home [to Palpa], disclose my status and then do social work with other people living with HIV, so that they too may have hope to live. I said to myself: I will live and I will let others living with HIV live”. Stories Read more stories about our work with people living with HIV