Stories

Five years ago, when Arnilda Simango was 13, she started dating a boy from her community, outside Xai-Xai City, in Gaza Province in southern Mozambique. A year later she got pregnant, at his insistence, and he left her shortly after the baby was born. AMODEFA’s youth services offered her counselling and advice throughout her pregnancy and became the network through which she made new friends.  Today, at the age of 18, she is raising her son, with help from her mother and plans to return to school. “When I started dating, I thought I wanted a partner who could take care of me and that could maybe fill the void I felt for not having a father. When I started the relationship with my boyfriend, he insisted that he needed a son because all his friends already had one. I had little space to say no because he threatened to date someone else and I was convinced he was the right person for me. When I got pregnant in 2016, he started behaving strangely. He stopped being affectionate and gave indications that he did not want to be with me anymore. That's when a friend of mine told me that there was a youth center where I could get advice on how to proceed in this situation". The Adolescent and Youth Friendly Services (SAAJ) center, based at the Patrice Lumumba Urban Health Center, on the outskirts of Xai-Xai, is run by AMODEFA and provides HIV testing and treatment, prenatal and postpartum consultations, and other information and services around sexual health and rights. The center is supported by the Women’s Integrated Sexual Health (WISH2ACTION) programme, led by IPPF.   "One day I walked there and received a lot of advice. As I was already 4 to 5 months pregnant, I was advised to open a prenatal form. They did all the follow-up until I gave birth to my son.” "Believe me, being a single mother at 14 was a suffocating experience and it could have been worse if I had not been accompanied by [the SAAJ]. I do not know how to thank them. I practically felt alone without knowing what to do, but I had a lot of advice here and made friends with other girls". Planning for the future  Arnilda dropped out of 7th grade once she became pregnant and helped her mother selling basic goods from a stall in her home. It is from this small business that her mother supports her two children who are still living at home, as well as five grandchildren. Arnilda plans to return to school next year to continue her studies now her son is old enough to stay with his grandmother. Her dream is to be a professional model. Until then she does not want to have another child, so she goes to the SAAJ for family planning purposes. Arnilda says she walks 50 minutes to the center every three months for the contraceptive injection.  "I wanted the implant, but it doesn't settle well with me, so I renew the injection every three months.  I do this because I need to continue studying to have a decent job that allows me to support my son. Next year I will go back to school. "A second child is not in the plans. I still consider myself a minor. Even the first child I only had because at the time I had no one to give me advice and show me the best way. I believed in my ex-boyfriend and today I have this lesson. Today I can say that I have come to my senses, not only from the experience of being a mother, but from everything I learn here [at the SAAJ]. There is no friend of mine who does not know SAAJ. I always advise them to approach here because I know they will have all kinds of counselling and accompaniment.”

Senegal’s IPPF Member Association, Association Sénégalaise pour le Bien-Etre Familial (ASBEF) ran two clinics in the capital, Dakar, until funding was cut in 2017 due to the reinstatement of the Global Gag Rule (GGR) by the US administration. The ASBEF clinic in the struggling suburb of Guediawaye was forced to close as a result of the GGR, leaving just the main headquarters in the heart of the city.    The GGR prohibits foreign non-governmental organizations (NGOs) who receive US assistance from providing abortion care services, even with the NGO’s non-US funds. Abortion is illegal in Senegal except when three doctors agree the procedure is required to save a mother’s life.  ASBEF applied for emergency funds and now offers an alternative service to the population of Guediawaye, offering sexual and reproductive health services through pop-up clinics.   Asba Hann is the president of the Guediawaye chapter of IPPF’s Africa region youth action movement. She explains how the Global Gag Rule (GGR) cuts have deprived youth of a space to ask questions about their sexuality and seek advice on contraception.  “Since the closure of the clinic, the nature of our advocacy has changed. We encounter a lot more problems in our area, above all from young people and women asking for services. ASBEF (Association Sénégalaise pour le Bien-Etre Familial) was a little bit less expensive for them and in this suburb there is a lot of poverty.   Our facilities as volunteers also closed. We offer information to young people but since the closure of the clinic and our space they no longer get it in the same way, because they used to come and visit us.   We still do activities but it’s difficult to get the information out, so young people worry about their sexual health and can’t get the confirmation needed for their questions.   Young people don’t want to be seen going to a pharmacy and getting contraception, at risk of being seen by members of the community. They preferred seeing a midwife, discreetly, and to obtain their contraception privately. Young people often also can’t afford the contraception in the clinics and pharmacies.  It would be much easier for us to have a specific place to hold events with the midwives who could then explain things to young people. A lot of the teenagers here still aren’t connected to the internet and active on social media. Others work all day and can’t look at their phones, and announcements get lost when they look at all their messages at night. Being on the ground is the best way for us to connect to young people.” 

Senegal’s IPPF Member Association, Association Sénégalaise pour le Bien-Etre Familial (ASBEF) ran two clinics in the capital, Dakar, until funding was cut in 2017 due to the reinstatement of the Global Gag Rule (GGR) by the US administration. The ASBEF clinic in the struggling suburb of Guediawaye was forced to close as a result of the GGR, leaving just the main headquarters in the heart of the city.   The GGR prohibits foreign non-governmental organizations (NGOs) who receive US assistance from providing abortion care services, even with the NGO’s non-US funds. Abortion is illegal in Senegal except when three doctors agree the procedure is required to save a mother’s life.  ASBEF applied for emergency funds and now offers an alternative service to the population of Guediawaye, offering sexual and reproductive health services through pop-up clinics.   Betty Guèye is a midwife who used to live in Guediawaye but moved to Dakar after the closure of the clinic in the suburb of Senegal’s capital following global gag rule (GGR) funding cuts. She describes the effects of the closure and how Association Sénégalaise pour le Bien-Etre Familial (ASBEF) staff try to maximise the reduced service they still offer.  “Since the clinic closed in this town everything has been very difficult. The majority of Senegalese are poor and we are losing clients because they cannot access the main clinic in Dakar. If they have an appointment on a Monday, after the weekend they won’t have the 200 francs (35 US cents) needed for the bus, and they will wait until Tuesday or Wednesday to come even though they are in pain.   The clinic was of huge benefit to the community of Guediawaye and the surrounding suburbs as well. What we see now is that women wait until pain or infections are at a more advanced stage before they visit us in Dakar. Another effect is that if they need to update their contraception they will exceed the date required for the new injection or pill and then get pregnant as a result.  In addition, raising awareness of sexual health in schools and neighbourhoods is a key part of our work. Religion and the lack of openness in the parent-child relationship inhibit these conversations in Senegal, and so young people don’t tell their parents when they have sexual health problems. We were very present in this area and now we only appear much more rarely in their lives, which has had negative consequences for the health of our young people.  If we were still there as before, there would be fewer teenage pregnancies as well, with the advice and contraception that we provide.  However, we hand out medication, we care for the community and we educate them when we can, when we are here and we have the money to do so. Our prices remain the same and they are competitive compared with the private clinics and pharmacies in the area.   Young people will tell you that they are closer to the midwives and nurses here than to their parents. They can tell them anything. If a girl tells me she has had sex I can give her the morning after pill, but if she goes to the local health center she may feel she is being watched by her neighbours.” Ndeye Yacine Touré is a midwife who regularly fields calls from young women in Guediawaye seeking advice on their sexual health, and who no longer know where to turn. The closure of the Association Sénégalaise pour le Bien-Etre Familial (ASBEF) clinic in their area has left them seeking often desperate solutions to the taboo of having a child outside of marriage.  “Many of our colleagues lost their jobs, and these were people who were supporting their families. It was a loss for the area as a whole, because this is a very poor neighbourhood where people don’t have many options in life. ASBEF Guediawaye was their main source of help because they came here for consultations but also for confidential advice.  The services we offer at ASBEF are special, in a way, especially in the area of family planning. Women were at ease at the clinic, but since then there is a gap in their lives. The patients call us day and night wanting advice, asking how to find the main clinic in Dakar. Some say they no longer get check-ups or seek help because they lack the money to go elsewhere. Others say they miss certain midwives or nurses.  We make use of emergency funds in several ways. We do pop-up events. I also give them my number and tell them how to get to the clinic in central Dakar, and reassure them that it will all be confidential and that they can seek treatment there.  In Senegal, a girl having sex outside marriage isn’t accepted. Some young women were taking contraception secretly, but since the closure of the clinic it’s no longer possible. Some of them got pregnant as a result. They don’t want to bump into their mother at the public clinic so they just stop taking contraception. In Senegal, a girl having sex outside marriage isn’t accepted. The impact on young people is particularly serious. Some tell me they know they have a sexually transmitted infection but they are too afraid to go to the hospital and get it treated.  Before they could talk to us and tell us that they had sex, and we could help them. They have to hide now and some seek unsafe abortions. ”  

Senegal’s IPPF Member Association, Association Sénégalaise pour le Bien-Etre Familial (ASBEF) ran two clinics in the capital, Dakar, until funding was cut in 2017 due to the reinstatement of the Global Gag Rule (GGR) by the US administration. The ASBEF clinic in the struggling suburb of Guediawaye was forced to close as a result of the GGR, leaving just the main headquarters in the heart of the city.   The GGR prohibits foreign non-governmental organizations (NGOs) who receive US assistance from providing abortion care services, even with the NGO’s non-US funds. Abortion is illegal in Senegal except when three doctors agree the procedure is required to save a mother’s life.  ASBEF applied for emergency funds and now offers an alternative service to the population of Guediawaye, offering sexual and reproductive health services through pop-up clinics. Maguette Mbow, a 33-year-old homemaker, describes how the closure of Association Sénégalaise pour le Bien-Etre Familial clinic in Guediawaye, a suburb of Dakar, has affected her, and explains the difficulties with the alternative providers available. She spoke about how the closure of her local clinic has impacted her life at a pop-up clinic set up for the day at a school in Guediawaye.  “I heard that ASBEF (Association Sénégalaise pour le Bien-Etre Familial),  was doing consultations here today and I dropped everything at home to come. There was a clinic here in Guediawaye but we don’t have it anymore.  I’m here for family planning because that’s what I used to get at the clinic; it was their strong point. I take the Pill and I came to change the type I take, but the midwife advised me today to keep taking the same one. I’ve used the pill between my pregnancies. I have two children aged 2 and 6, but for now I’m not sure if I want a third child.   When the clinic closed, I started going to the public facilities instead. There is always an enormous queue. You can get there in the morning and wait until 3pm for a consultation. (The closure) has affected everyone here very seriously. All my friends and family went to ASBEF Guediawaye, but now we are in the other public and private clinics receiving a really poor service.  I had all of my pre-natal care at ASBEF and when I was younger I used the services for young people as well. They helped me take the morning after pill a few times and that really left its mark on me. They are great with young people; they are knowledgeable and really good with teenagers. There are still taboos surrounding sexuality in Senegal but they know how to handle them.  These days, when ASBEF come to Guediawaye they have to set up in different places each time. It’s a bit annoying because if you know a place well and it’s full of well-trained people who you know personally, you feel more at ease. I would like things to go back to how they were before, and for the clinic to reopen. I would also have liked to send my children there one day when the time came, to benefit from the same service.  Sometimes I travel right into Dakar for a consultation at the ASBEF headquarters, but often I don’t have the money.” Fatou Bimtou Diop, 20, is a final year student at Lycée Seydina Limamou Laye in Guediawaye. She explains why the closure of the Association Sénégalaise pour le Bien-Etre Familial clinic in her area in 2017 means she no longer regularly seeks advice on her sexual health.  “I came here today for a consultation. I haven’t been for two years because the clinic closed. I don’t know why that happened but I would really like that decision to be reversed.   Yes, there are other clinics here but I don’t feel as relaxed as with ASBEF (Association Sénégalaise pour le Bien-Etre Familial). I used to feel really at ease because there were other young people like me there. In the other clinics I know I might see someone’s mother or my aunties and it worries me too much.   They explained things well and the set-up felt secure. We could talk about the intimate problems that were affecting us to the ASBEF staff. I went because I have really painful periods, for example. Sometimes I wouldn’t have the nerve to ask certain questions but my friends who went to the ASBEF clinic would ask and then tell me the responses that they got.  These days we end up talking a lot about girls who are 14,15 years old who are pregnant. When the ASBEF clinic was there it was really rare to see a girl that young with a baby but now it happens very frequently. A friend’s younger sister has a little boy now and she had to have a caesarian section because she’s younger than us.  The clinic in Dakar is too far away. I have to go to school during the day so I can’t take the time off. I came to the session today at school and it was good to discuss my problems, but it took quite a long time to get seen by a midwife.”  Ngouye Cissé, a 30-year-old woman who gave birth to her first child in her early teens, but who has since used regular contraception provided by ASBEF (Association Sénégalaise pour le Bien-Etre Familial). She visits the association’s pop-up clinics whenever they are in Guediawaye.  “I used to attend the clinic regularly and then one day I didn’t know what happened. The clinic just shut down.  Senegal’s economic situation is difficult and we don’t have a lot of money. The fees for a consultation are quite expensive, but when ASBEF does come into the community it’s free.  I most recently visited the pop-up clinic because I was having some vaginal discharge and I didn’t know why. The midwife took care of me and gave me some advice and medication.   Before I came here for my check-up, the public hospital was asking me to do a lot of tests and I was afraid I had some kind of terrible disease. But when I came to the ASBEF midwife simply listened to me, explained what I had, and then gave me the right medication straight away. I feel really relieved.  I’m divorced and I have three boys. I had pre-natal care with ASBEF for the first two pregnancies, but with the third, my 2-year-old son, I had to go to a public hospital. The experiences couldn’t be more different. First, there is a big difference in price, as ASBEF is much cheaper. Also, at the ASBEF clinic we are really listened to. The midwife explains things and gives me information. We can talk about our problems openly and without fear, unlike in other health centers.  What I see now that the clinic has closed is a lot more pregnant young girls, problems with STIs and in order to get treatment we have to go to the public and private clinics.   When people hear that ASBEF is back in town there is a huge rush to get a consultation, because the need is there but people don’t know where else to go. Unfortunately, the transport to go to the clinic in Dakar costs a lot of money for us that we don’t have. Some households don’t even have enough to eat.  There isn’t a huge difference between the consultations in the old clinic and the pop-up events that ASBEF organize. They still listen to you properly and it’s well organized. It just takes longer to get seen.” Moudel Bassoum, a 22-year student studying NGO management in Dakar, explains why she has been unable to replace the welcome and care she received at the now closed Association Sénégalaise pour le Bien-Etre Familial clinic in her hometown of Guediawaye, but still makes us of the pop-up clinic when it is available.  “I used to go to the clinic regularly but since it closed, we only see the staff rarely around here. I came with my friends today for a free check-up. I told the whole neighbourhood that ASBEF (Association Sénégalaise pour le Bien-Etre Familial) were doing a pop-up clinic today so that they could come for free consultations.  It’s not easy to get to the main clinic in Dakar for us. The effects of the closure are numerous, especially on young people. It helped us so much but now I hear a lot more about teenage pregnancies and STIs, not to mention girls trying to abort pregnancies by themselves. When my friend had an infection she went all the way into Dakar for the consultation because the public clinic is more expensive. I would much rather talk to a woman about this type of problem and at the public clinic you don’t get to pick who you talk to. You have to say everything in front of everyone.  I don’t think the service we receive since the closure is different when the ASBEF clinic set up here for the day, but the staff are usually not the same and it’s less frequent. It’s free so when they do come there are a lot of people. I would really like the clinic to be re-established when I have a baby one day. I want that welcome, and to know that they will listen to you.”  

Marinho, 30, works as an activista for Amodefa’s Challenge TB programme, bringing treatment to remote villages in the Ribaué district of Nampula. Since August last year he has identified 84 cases of TB in the eight communities in which we works; “75 patients are in treatment at the moment, the rest are recovered,” he says. Before Amodefa started work in Nampula, Marinho says, “people were dying because they couldn’t reach the hospital, but with this programme it is becoming easier because we bring the medication to the patients.” However, lack of transport means it is a challenge for him to keep on top of all his cases. “The distances are far and the few bikes we have are breaking,” Marinho says. Yesterday he travelled 40 km to visit his patients. Some of the communities he visits are up to 50 km away. In the first quarter of this year 1,318 people were tested for TB in the eight districts where Amodefa operates; in the second quarter, 2,106 were tested; and in the third quarter, the number reached 3,154. More than half of these people were diagnosed to have TB. The surge in the number of people going for tests is in a large part due to Amodefa’s ‘Day of the Cough’.  On the 27th of each month teams of activistas and volunteers go into communities, schools and jails to educate people about TB.   Before volunteers had to go from house to house to identify patients, “but now, with the lectures, it’s easy to find people who are TB positive because they are identifying themselves,” says Marinho. Children are particularly receptive to Amodefa’s message, Marinho says. He remembers one woman who had been sick for a long time and her daughter, knowing he was an activist, sought him out. The patient’s initial test for TB came back negative, so she was given alternative medication.  “She took the tablets but she was still sick - she was unable to walk or to eat,” Marinho says.  “We brought her here to the clinic, examined her and she immediately started TB treatment. Now she has started her recovery and is able to sit.” Lessons taught during the ‘Day of the Cough’ means communities are also now taking greater precautions against the disease, he says. Steps such as opening windows, cleaning the house, not eating from one communal bowl, and practising ‘coughing etiquette’ have all helped limit the spread of TB.  “People understand now and are taking serious measures to prevent it,” Marinho says. However, the US decision to withdraw funding from Amodefa following the introduction of the Global Gag Rule , could halt the Challenge TB programme just as it is gaining momentum. “If the programme stops the people will suffer,” says Marinho. “For people who live too far from the hospital to receive treatment, this programme saves their lives. Knowing Amodefa has come to eliminate TB, it can’t stop. If they stop now the TB will get resistant, so we’ve got to keep going, we’ve got to get stronger.”   SUPPORT OUR WORK WITH A DONATION

Antonio Junior Xiranza is 12 years old. He lives with his Aunt Talita Agosto Mujovo, 39, and her three children in Maputo, Mozambique, after his parents both died from HIV-related illnesses. Antonio is HIV positive, something that Talita was able to reveal to him over the course of nine counselling sessions through IPPF Member Association AMODEFA’s Ntyiso programme. When Antonio was sent to Talita in 2015 he had no understanding of his illness. He was severely underweight and wouldn’t take his medication. “I didn’t think he was going to make it,” says Talita. But following AMODEFA’s intervention last year Antonio’s health has improved rapidly and is gaining weight. This is in large part because Antonio, though still young, has chosen to take on the responsibility for managing his illness himself.  “He takes his medication without being told”, says Talita. “If he’s injured he knows the other children can’t touch his wound.” Antonio is still small for his age but says he feels stronger. He is well enough now to attend school regularly and is already thinking about the future; when he grows up he wants to be a fireman.“I am happy about life here,” he says, shyly. Talita says she is “relieved” to see these changes in Antonio. “At first I was not going to say anything. I would have waited until he was 18 to tell him,” Talita says, which would have continued to put pressure on the entire family. “But with the help of the counselling I had through Ntyiso I was able to tell him now.” While Ntyiso was intended to help parents speak more openly about HIV with their children, it has given Talita the confidence to discuss the illness more widely. “I was able to tell my father, who was sick and had a wound, that he should get tested for HIV,” she says. Her father was diagnosed positive and is now in treatment. “Before I wouldn’t have advised people to take the test, I would have just kept quiet,” she says. Read more about AMODEFA's tireless work in Mozambique

Albertina Machaieie has been working with HIV patients for Amodefa for 38 years and is their longest serving nurse. “I’m going to work forever,” she says. “I like helping people, that’s why I do this job.” Albertina heads up Amodefa’s home care programme which provides medical, nutritional and emotional support to HIV positive patients living in the poorest suburbs of Maputo, the capital of Mozambique. She has seen a dramatic change in attitudes to HIV in the 19 years she has been running the service. In the past she had to hide her car and would visit her patients anonymously. “People feared HIV so they feared me coming to them,” she says.Now people welcome her into the community as a friend and will direct new patients to her. “They call us ‘Muhanyisse’”, which means saviour in the local language Shangaan, she says. Albertina and another nurse work with a large team of volunteers, or ‘activistas’, most of whom are also HIV positive. As well as delivering medication and food to patients and performing health examinations, an important part of Amodefa’s work is continuing to change attitudes towards HIV. “The homecare project encompasses everything,” she says. “It’s not just treatment for illness, we also work with the mind – people need to change their mindset.” She and the activistas give lectures in the community to raise awareness of HIV, and also offer counselling to patients, many of whom find it difficult to accept their HIV positive status. “Husbands and wives stop understanding each other when one is living in denial of HIV,” says Albertina. “They blame the illness on witchcraft.” In other cases, those carrying the virus are scared to tell their families for fear of being rejected. “There are many stories of family members, particularly of wives, who have found they are HIV positive and partners have threatened to leave,” she says. “But when Amodefa has stepped in and advocated, the husband has stayed.” This holistic approach to its homecare has been so effective that medical and psychology students have come from Brazil, the US and Mexico to Mozambique to study the programme and to learn from Albertina’s experience. “I am the library for Amodefa,” she jokes. Over the course of her career Albertina has worked with many challenging cases – particularly men. “Women are more open to treatment because they want to get better so they can care for their children,” she says, “but men often won’t seek help until their health has severely deteriorated.” She recalls one case where a woman tested positive for HIV while she was pregnant. She told her husband to get tested but he refused, and he also prevented his wife from taking any treatment. As a result her baby was born HIV positive - as were her second and third born. “With her last child she started taking the treatment without her husband’s knowledge and the baby was born without HIV,” says Albertina. “This man now says, ‘People, you need to be open – I have three positive children and it is my fault because I would not accept the truth.’” “Children who are HIV positive and don’t know often abandon their medication because they are tired of taking the drugs,” says Albertina. “Ntyiso teaches the importance of taking the medicine. When they are aware of their status, they start taking the medicine normally.” Albertina worked with ten families during the pilot phase of the programme. “Already I have seen great changes in the children, it shows why this project of revelation is so important.” The Ntiyso is a pilot project implemented in Maputo City and it has its focus on disclosure of the HIV + status to adolescents. It targets mothers, parents and caregivers of adolescents. The main activities are: Education and training of Mothers, Parents and caregivers of adolescents to reveal HIV+ status to their adolescents. Due to the Global Gag Rule this project lost its funding and was forced to close.

Palmira Enoque Tembe, 54, is HIV positive She lives with two sons, who are also HIV positive, and four grandchildren in a small house in Bairro Feiroviaro on the outskirts of Maputo. Three times a week she is visited by Amodefa volunteers and once a week by a nurse who provide medication, food and therapy to the family. “Amodefa counsels me through the difficulties in life,” Palmira says. Palmira found out she had HIV when her youngest child was nine months old. He was diagnosed as HIV positive. Palmira asked her husband to get tested too,“He refused” says Palmira. “He said I was possessed by evil spirits and was trying to kill him and my son". Her husband abandoned the family and Palmira was left to battle the illness and raise the children on her own. “I was terrified. I lost hope. I didn’t want to do anything, just sit in my room and cry,” she says. Now, however, the nutritious food, medication and regular medical check-ups she receives as part of the homecare programme have given her a new lease on life. “I’m fine and I am making plans for the future. I know now to get ill is not to die,” says Palmira, who has started to subsistence farm again. At first she was wary of the service. “It seemed like an advertisement for having HIV and I didn’t want my neighbours to isolate me,” she says. “But now I depend on it.” It was through Amodefa’s new pilot counselling project, ‘Ntyiso’ - which translates as ‘The Truth’ in the local language, Shangaan - Palmira was finally able to open up to her son that he had HIV too. While he had always suspected he was carrying the virus, he needed to hear it from his mother for it to become real.“It has changed by life,” she says. “It has improved our relationship because I no longer feel ashamed.” The Ntiyso is a pilot project implemented in Maputo City and it has its focus on disclosure of the HIV + status to adolescents. It targets mothers, parents and caregivers of adolescents. The main activities are: Education and training of Mothers, Parents and caregivers of adolescents to reveal HIV+ status to their adolescents. Due to the Global Gag Rule this project lost its funding and was forced to close. Read more about AMODEFA's tireless work in Mozambique